Flares, flares, FLARES!

Meds to move

This is the real me.  

Flares, flares, FLARES!   It’s been awhile, so I guess it is time.  But I am not ready.  As I write this, the pain has traveled up my arms.  Forget about my feet.  The Frankenstein walk is very becoming and sexy.  To add to the mix, headaches.  Good times.

I need to go grocery shopping, but somehow I don’t think that will happen.  Just exhausted.  No amount of sleep helps because all you want to do is sleep.  Even going to bed at 7:30 at night just doesn’t give you enough sleep.  I hate to see when I am older. 

I have said it before and I will say it again, thank goodness for the kids at school.  They keep me moving and focused on them for the school day.  When the day is over and I have to go home, I collapse. 

One of my beautiful friends is able to control things naturally.  I know she sometimes still has a hard time though.  I wish I could do what she does; however, when I try to get off things all hell breaks loose.

I also worry about Shaun.  Already he is dealing with going to doctors, all having various diagnosis’.  How frustrating.  I know how he feels because I have dealt with this my entire life.  He was always a pretty healthy child, and I hope it continues into his adult life.  Hopefully this recent thing is just a bump in the road.

What is it like to go out?  I have no clue because I am too exhausted to do anything.  Sad…but I have learned that I have to do what is right for me and listen to my body.  Even though I hate what it says sometimes. 

Here is to all of us out there dealing with this crap.  May we gather strength from each other, be it face to face or through cyber land.